On Saying “Everything’s Fine,” When It’s Not: Our Solidarity with the Shunammite Woman

I had been apprehensive about Titus’s eye appointment. Whenever I’d scan my calendar for what was coming up, that appointment would catch my eye–memories of difficult appointments we’d had before still fresh. Titus’s eye doctor is someone whom I thank God for–she is a brilliant surgeon and one of the keenest doctors I’ve ever dealt with (and I’ve dealt with a plenty). She performed Titus’s eye surgery to correct his severe crossing when he was just six months old–a surgery many doctors won’t do that early. She’s aggressive for her patients, she’s frank, competent, no-nonsense, and I trust her.

When she first saw Titus and he was just 3 months old, she told me Titus’s vision problems were not vision problems, but neurological problems that may be impossible to fix–but she said she’d do everything she could to at least get his eyes straight enough that his brain could try and understand what he was seeing.

I’ll always remember that moment and her directness. The truth she spoke, hard as it was, was a kindness. How much of his progress is a result of her assertiveness and competence–allowing eyes to start to learn to work together at a young developmental stage?

But, even with my love for our doctor, eye exams and dilation are hard for Titus. Knowing this, I did everything I could the morning of the appointment to keep us cheerful and well-functioning so that we could get into that appointment with all the resources we needed to survive it.

And everything fell apart–which wasn’t a huge surprise, it’s what I was expecting. It was traumatic enough that they will likely do general anesthesia next time. What was a surprise was that it felt as though God had forgotten us that afternoon. I’ve been through traumatic events with Titus before–much more traumatic than an eye appointment, but it was always God’s presence that carried us–the trust and reality that he wouldn’t leave. But that day in the little exam room, my prayers seemed to bounce down off the ceiling and slap me in the face. I could endure anything, if only Jesus was close at hand, if only he was there opening my eyes to his goodness despite the obvious difficulties, if only he was letting me know he cared about my son–yet my sense of him had vanished.

A week or so prior, I had been reading about the Shunammite woman in 2 Kings 4. She was a wealthy, married woman, who showed over-the-top hospitality to Elisha the prophet. She even had a room built for him to stay in whenever he came by. Elisha wanted to repay her for this kindness and so he miraculously pronounced to her that she would have a son, although she had no children and her husband was old. She couldn’t believe Elisha and said to him, “No, my lord. Man of God, do not lie to your servant.” But it was true. She had a son one year later.

The boy grew and one day came to his father complaining that his head hurt. The father sent the boy to his mother. She held him on her lap until he died. I know something of holding my son in my lap, all but lifeless and gray–so horrific, so peaceful, waiting, wondering, with death so close at hand. It is the sort of angst that only the Spirit can express.

So the Shunammite woman took her dead son and laid him on Elisha’s bed in the room she had built for him.  Then she went to her husband and told him she was going to see Elisha, but when he asked her if everything was ok and why she was going to see him she said, “Everything is all right.” Or, in the ESV, “All is well.” No mention that their son had died.

When she comes to where Elisha is, his servant approaches her and asks if everything is all right, inquiring about her husband and also her son, and again she says, “Everything is all right.” We might start to wonder if perhaps she was simply full of faith and hope; if she was saying all was well because she so trusted that all would be well. But we see a very different story unfold. Everything was NOT fine, to the point that it was too terrible for her even to speak it. She was using “Everything’s all right,” as a cover for her deep pain–so deep that it couldn’t be voiced.

The Shunammite woman would not rest until she had Elisha himself. She went to him and grabbed hold of his feet. Elisha begins to see the truth, though she has said nothing, and he says, “She is in severe anguish, and the Lord has hidden it from me. He hasn’t told me.” Severe anguish. That sort of anguish isn’t the kind you can let out in bits and pieces when asked. It is the kind that overtakes you.

Her recrimination of Elisha is crushing. She says to Elisha–to God really, “Did I ask my lord for a son? Didn’t I say, ‘Do not lie to me?'” It’s like she’s saying, “Why did you give him to me in the first place if you meant to take him like this?” She still can’t bring herself to say that the boy is dead. Her grief only exposes itself to the ONE person she has some tiny hope could help her–not her husband, not the servant–only to the Man of God.

Elisha tells his servant to go and put his staff on the boy to revive him, but it isn’t enough for the Shunammite. She will not leave Elisha, forcing him to go himself to the boy. After the servant’s effort to bring the boy to life fails, Elisha then acts. Two times he acts to bring the boy back to life, laying over him, bending over him, and making him alive.

I confess that the recriminations that bubbled up in my heart after Titus’s awful appointment were a shock to myself. I have not been one to question God when it comes to Titus. In the dark times I have cried, I have wavered with weak faith, but to question God? Whenever one would start to form, my mouth would be stopped in reverence. Now they poured out.

The shape my recriminations took were from the gut, “You said you’d be with me. You said wouldn’t leave me. Why did you make me walk through this fire alone? Do you love Titus? He can’t understand what’s happening–has he suffered enough?” as I sobbed my way home.  As the tears ran, so did my mind–to the Shunammite woman–given a gift she didn’t ask for and trial she couldn’t even speak aloud.

As my friends checked in on how the appointment went, I so much wanted to say, “Fine. Everything’s all right.” But it wasn’t. And as I contemplated who the Shunammite took her complaint to, I remembered she finally let her grief out to the man who could do something about it. And these sisters in Christ also could do something about my problems, my grief. They, like Elisha, are connected to God. They know him, he has written his words on their hearts and put them in their mouth, he has given them his Spirit. So I didn’t say, “Everything’s all right.” I owned that I felt abandoned–not because God put me in a hard circumstance, but because it felt like he put me there alone.

Even as I confessed this, I was beginning to know it wasn’t true. God was pummeling me with evidence of his care: the story of the Shunammite that God had put in my Bible reading the week before the appointment, in the friends who prayed, even in the breaking loose of the questions that drove me to no one but God himself forcing me to tell him that, “Everything is not all right.” And most important of all, the evidence of Jesus, on the cross and risen–the one place that silences all questions of love or nearness, permanently fixed in history, permanently true.

I don’t know if you’ve ever struggled like did, like I do, to trust his presence, to trust him, when he seems far away. To own the real feelings inside, to take them directly to him and to the people connected to him. I don’t know if the pain feels so big that all you say is, “Everything’s all right.” But if that’s you, remember the Shunammite woman with me. Sometimes our grief feels so deep that it’s unspeakable. The only Person who can bear it fully is God himself, so take it to him.

Like the Shunammite, do not walk away from God until he comes with you. Stay with him no matter what. Remind him of his promises to you: that he said he’ll never leave you or forsake, that he said he’d be with you in the flood and the fire, that he’ll make dead bodies alive, not in this life, but the one to come. He hasn’t forgotten those promises. He will not go back on them, because he is faithful to his Name and his Word. He really does love us.

I don’t know what became of the Shunammite’s son. I don’t know if when he was brought to life he was restored to perfect, pristine health or if he had lingering effects of the ordeal in the form of a disability. I don’t know if he trusted Yahweh in his gray hairs. I’m glad the Bible doesn’t tell us that. It simply says he was restored to life. But he did die eventually, as his mom did, as Elisha did, as we all will.

Sometimes everything isn’t fine down here. Sometimes it’s a big mess and cry-fest. But we have the seeds of heaven deep inside. We have a glimpse of the end–of dead bodies restored to life, of all things made new. We have the God of Elisha, the God of the Shunammite woman, with us now. We have Jesus Christ, the one who came to save all the people who are willing to say, “I’m not fine,” I’m a sinner in need of a Savior. I need you, Jesus, to die for my sin. I need you to be raised from the dead and raise me with your resurrection power on the last day. I need you to put hope in my hopeless heart. And I need you to do right by my son–to be the God of the weak and lowly that you say you are.

May God be glorified in us, even when everything isn’t fine. Someday we will say in truth, “All is well.” Physically, spiritually, relationally–well. Hold fast to Christ until that day. He’s got you.

 

When You’re Walking Through More Than “Just a Season”: Perpetual Living in the Season of Chronic Dying

I love seasons. I love how there is always something to anticipate, always something to look forward to: snowy woolish white, new green buds, lush full life, the brilliancy of death in the leaves of autumn.

And the season motif was first put forward by the wisest of men: Solomon.

“For everything there is a season, and a time for every matter under heaven:

a time to be born, and a time to die;

a time to plant, and a time to pluck up what is planted;

a time to kill, and a time to heal;

a time to break down, and a time to build up;

a time to weep, and a time to laugh;

a time to mourn, and a time to dance;

a time to cast away stones, and a time to gather stones together;

a time to embrace, and a time to refrain from embracing;

a time to seek, and a time to lose;

a time to keep, and a time to cast away;

a time to tear, and a time to sew;

a time to keep silence, and a time to speak;

a time to love, and a time to hate;

a time for war, and a time for peace” (Ecclesiastes 3:1-8 ESV)

I’m not sure how I would have survived the “season of motherhood” that included multiple littles with no older kids, little sleep, crazy amounts of diapers, and very little adult conversation without the constant reminder that I was in a season, that there would be an end, that what faithfulness to that job looked like would not be what it looked like forever. In a few short years, faithfulness would be teaching reading, tying shoes, and working on a solution to toothpaste on the walls, cabinets, and floors.

And now, faithfulness has expanded to include in-depth conversations about the Scriptures, help with increasingly difficult homework, maintaining rhythms and schedules, cultivating mentor-like friendships with my own growing kids, and legitimately funny jokes.

But I’ve noticed that there are some areas of life that are perpetual seasons; they aren’t “just a season” as the sages like to say. They are things that won’t relent until we die.

What about the depression that is vastly longer than the season of “post-partum”? What about the hard marriage that lasts fifty or sixty years? What about the unwanted singleness that endures your whole life? Or the diagnosis that doesn’t have a cure? Or the early death of a loved one who you never do get to see again in this life? Or infertility that doesn’t abate? What about seasons that have no transient time-tables?

What about caring for a child with special needs whose needs remain into adulthood? There isn’t a changing of the seasons in the same way that there is with other children, and while many parents are either longing for or dreading the day their children are independent adults, parents of kids with significant special needs do not anticipate that season in the same way. Which isn’t to say that things are stagnant or always look the same for those parents or kids. We all do change. Things can be easier or harder, simpler or more complex. And many people like myself, simply do not know what future stages will look like. I have reason to be very hopeful, but I simply cannot know. I must walk forward with no predictable season in front of me.

I’ve heard parents with “typical” kids say that that’s true for everyone, not just special needs parents and kids: none of us know what the future will hold for our children. And of course they’re right. But there is a legitimate difference of how we anticipate the future with “normal” kids and special needs kids. With my “normal” kids, it’s true I don’t know the future, but there is a template of growth, development, and maturity that is to be expected, not because we’re pretending to be God and predicting the future or presuming on his kindness, but precisely because what Solomon said is true. To everything there is a season.

Anyone who’s observed life knows how things are supposed to go. The reason we grieve special needs or untimely death or terrible illness is because those seasons have been interrupted or the predicted flow of things has been changed. The reason the grief over the death of a fourteen-year old is particularly horrific and different than the grief over a ninety-eight year old is because we have an innate understanding of how this is supposed to work.

Yet, there is great hope in knowing that while you may not be in “just a season” temporally speaking, this whole temporal life is a season. This life is the melting of winter for Christians. For some of us who have been set down in the shadow with little to block the bitter wind, we may weather this life with an ongoing chill in the bones. And for others, the sun may be throwing a bit more warmth as we perceive a centimeter of green on the tips of the trees. So, for some, this thing called life is a season with a certain sort of predictability to it—with one thing leading to another. And for others, this thing called life is a season of ongoing and chronic trial that doesn’t follow a pattern. And for most everyone, it is a combination of both.

But, we must know that winter is doomed, no matter our experience here and now. We wait for the fullness of life to come, but it is coming. Things are changing in unseen places. The seeds are underground, but they are pushing up. We may be in a chronic season of dying—dying to our expectations, our hopes, our good desires even, but we can live through it. We can perpetually live in the season of chronic dying because Christ has died once for all and he has put us in himself. He has put himself in us. Let Christ in you, the hope of glory, keep you renewed in each and every season—especially the one of chronic dying.

He knows a thing or two about how to help you live through that.

The Fog and the Longest View

On vacation this past week, our son Titus had a seizure.

Just writing that, I know that each person reading has a different understanding of what that means. Lots of us think of seizures as fairly benign, because they usually are. Some are freaked out by them. Titus has only had two seizures, both were this kind: status epilepticus. They’re not your typical seizure; they’re long, life threatening, and the mortality stats on them aren’t encouraging.

After the first one, which landed him in a coma in the PICU, we were on high alert for the possibility more would happen. But for over two years, things have been quiet. Until on vacation, when it was the farthest thing from my mind.

It’s hard to describe what Titus’s seizures are like without sounding like a real drama lover. It seems for those of us who really dislike drama, God has this way of inserting it into our lives, and forcing us to own that we don’t control how peaceful things are.

The simple fact is he looks like he’s dying, or even dead. His eyes are fixed, he’s not “with us,” he doesn’t move or have any faculties, and he stops breathing, which turns him the color of purple gray dusk. It’s not something I can put out of my mind by force. It just shows up there, in my waking sight. It’s there when I close my eyes at night, pressing on me.

Now is a good time to remember the all the positive stuff, like how he recovered from the seizure on his own this time, how it didn’t keep on, how he got checked out and was fine and got to come home, how it’s likely his meds have been working really well over the last couple years and an increased dose will help them to keep working well.

Those facts are a real comfort and they are worth giving thanks over. But they’re so superficial in the end. They don’t reach the deep places that need comfort.

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Two days after the seizure, we were hiking along the rocks on the shore of Lake Superior in a thorough fog. The mist and ashy cloud was everywhere, and who could believe in weather as brooding as that, that the sun was out there, above it all, gleaming and oblivious?

There are times when this belief seems as far-fetched as a fairy tale. How can the sun be giving warmth and causing life, when all around is shadow and veil? Shouldn’t I feel it? Isn’t feeling it what makes it real? And that’s when the hot, life-giving rebuke of God sears:

“Have you entered into the springs of the sea,
or walked in the recesses of the deep?
Have the gates of death been revealed to you,
or have you seen the gates of deep darkness?
Have you comprehended the expanse of the earth?
Declare, if you know all this.

“Where is the way to the dwelling of light,
and where is the place of darkness,
that you may take it to its territory
and that you may discern the paths to its home?
You know, for you were born then,
and the number of your days is great!” Job 38:16-21 (ESV)

I must believe, am commanded to believe, that in our darkest haze, the light is unchanged. Because it is in our darkest haze that we stop straining for the earthly light of better circumstances, as if we understand what that would look like, and start leaning hard on the unseen Light that has already overcome the darkness. This is our only comfort in life and death. It’s that we belong, body and soul, to the Light. I do not wish for foggy days–gifts that they may be to my vision of God. But I do not wish them away either.

Never do I feel more keenly how much an unearned gift faith is, than in the fog, where no long views are offered me. It’s when we’re granted no long view, that we must exercise the faith that depends on the unseen longest view. Oh for the grace to believe when we have not seen–we have not seen healing, we have not seen relief, we have not placed our fingers in the holes in his hands, we have not seen resolution or an unsullied idea of the next twenty or thirty or fifty years. We have not seen it here, in this world. Yet, give us the grace to believe Christ is all and in all and there is a better world to come–this is my daily prayer.

“Jesus said to him, ‘Have you believed because you have seen me? Blessed are those who have not seen and yet have believed.’” John 20:29 (ESV)

A Podcast Interview: Risen Motherhood

Last week I was interviewed by Laura Wiffler and Emily Jensen of the Risen Motherhood podcast about having a child with special needs. It was a neat experience and I really loved getting to share Gospel hope with moms.

Emily and Laura both have little kiddos and are applying the Gospel to motherhood as they walk through it. Their podcast hits about every topic you could hope for as a mom–from food choices to fear to guilt to comparison. You can subscribe to Risen Motherhood podcast on iTunes or listen on their website, which includes many helpful resources and links.

Listen to my interview here or here.

 

Soul Keeping in the Dark

It’s no secret that our special needs son has sleep problems. It’s been true since the first days of his life. I still remember his never-more-than-twenty-minute naps. And his rarely-more-than-2-hour stretches of sleep during his first year (and often only 30 minutes or an hour). Then his first year ended, but the sleep problems sallied forth.

His feeding tube and anti-seizure meds gave some reprieve, but not enough to make anything close to normal. Three and a half years in and he’s still up every night, usually multiple times or for sessions of writhing/crying. I don’t share this as a pity play, but a fact.

Lately I was reading The Life We Never Expected by Andrew and Rachel Wilson. It’s a book about hard realities and Gospel hope raising two autistic children. I haven’t ventured into much reading of this sort on disability because when you’re living a hard reality, the last thing I feel like doing is reading about how hard it is. The real thing is enough. But I read it so that I could see if it was a good book to recommend to others. And it is. It’s really good. These excerpts from the chapter Quest For Rest wrecked me:

…”it’s no coincidence that the Scriptures talk about fasting from various physical joys at times–food, drink, sex–but never from sleep.”

“In our case, this has meant reconfiguring our entire lives to get more rest.”

“…we’re learning how to pray and process our disappointment with God. It might sound ridiculous to say this, in light of all that has happened over the past few years, but I think the greatest single challenge to my prayer life has been the fact that so many prayers for sleep have gone unanswered. For night after night, I have put Zeke in bed, knelt down next to him, and said, ‘Father, we pray that you would give Zeke a good night’s sleep. Please give him peace and rest, and may he wake up after 5 o’clock, or even after six. It would be so much better for him and so much better for us, and it would cost you nothing. Please, Father. Amen.”

“Then the next morning, as the familiar patter of feet comes down the corridor toward our bedroom, I have rolled over to look at the alarm clock and seen in despair that it says 4:27, or 3:52, or 4:41. And immediately the thought comes: No, God hasn’t answered my prayer. Again.”

The words are painful. They resonate. Tom and I have prayed every night since Titus was born for good rest for him and us. We have changed the rhythms of our lives to keep sane. We’ve let things go. Even so, sometimes I find myself pushed under water.

Titus has learned to pray. It’s one of the first constructive behaviors he picked up on and regularly started imitating. We’d fold our hands and bow our heads to pray and he would too. He still does. At night, I’ve never been able to get him to stop the cycle of writhing/crying once it starts up. It just has to play out. But probably 6 or more months ago, I started saying to him, in the dead middle of the night, very loudly and forcefully, “Titus, let’s pray!” And amazingly, the writhing and crying stopped and he grabbed my hand, closed his eyes and waited for me to pray. Which I did. It felt a bit like a miracle.

Now he asks me to pray anywhere from 2 to 10 times per night, depending on how much he’s up. He wakes up and says, “Mommy! Pray! Pray! Mommy!” There have been nights when I’ve wanted not to pray. The seeming futility of it overwhelms me, and I think, What good is it to pray, when I ask night after night for rest and the answer is no, and Titus will be asking me to pray again in 10 minutes or an hour or 2 hours. 

Titus still writhes and cries at night, he’s still up just as much as he ever was before he started asking me to pray through the night. But, in my despair over the sleep, I could easily miss something huge. My son asks to pray. My son asks to pray. 

Think of all the kindness of God and answered prayer in him asking to pray. It’s worth pausing over and giving thanks for.

Even as I give thanks for that amazing thing, it doesn’t erase the difficulty of sleep problems. It is grueling and lonely. Yet, prayer keeps me from being isolated from the One person I can’t live without. In the darkness, we turn to God and pray, because he’s there with us. The rest of the house may be asleep, but God isn’t. In bleariness and bone-weariness, I talk to the One who keeps our souls through the night.

If you find yourself in the dark and seemingly alone, my hope for you is that you would know God’s nearness. Sometimes the darkness remains, sometimes the circumstances won’t change, but always, always, always, he’s there. He’s keeping you and that’s what counts.

Psalm 121

[1] I lift up my eyes to the hills.
From where does my help come?
[2] My help comes from the LORD,
who made heaven and earth.

[3] He will not let your foot be moved;
he who keeps you will not slumber.
[4] Behold, he who keeps Israel
will neither slumber nor sleep.

[5] The LORD is your keeper;
the LORD is your shade on your right hand.
[6] The sun shall not strike you by day,
nor the moon by night.

[7] The LORD will keep you from all evil;
he will keep your life.
[8] The LORD will keep
your going out and your coming in
from this time forth and forevermore. (ESV)

A Tear for the Clean Slippers That Aren’t

“Occasionally weep deeply over the life you hoped would be. Grieve the losses. Then wash your face. Trust God. And embrace the life you have.”

That’s what Pastor John posted the other day. A friend sent it to me as it was a perfectly timed word for her life. It hit me with a tightness, almost a guiltiness.

I got myself a pair of slippers a couple months ago. It’s no big deal really, but for some reason it was a big deal to me. I looked and looked and price compared and waited and waited for a couple years and finally clicked the button to buy them. It’s not like they were expensive or a well-known brand, they just happened to be exactly what I wanted.

Since I got them they’ve been vomited on more times than I can count. The first time it was just splatters, drips, and it didn’t bother me. Since then, it’s been fuller versions and I still haven’t been upset. I even took a picture the other day, after I’d cleaned them off, and laughed at the ridiculousness of it all.

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But somewhere in all that, something has been shoved down. And today it pushed its way out. I sat down to feed Titus, which is always through his g-tube, because he can’t eat by mouth. And his extension tube hadn’t been clipped. So when I attached it the button in his tummy, his stomach contents started to leak out the extension tube, right on–you guessed it–my slipper. It was completely minor. NO BIG DEAL. It’s happened before, it will happen again and I caught it pretty quickly precisely because it was dripping on my foot.

Yet in that moment, there was grief. Grief at the absurdity of what was happening and that my slipper had stomach junk on it again and that somehow it’s supposed to be normal. In that moment, I was transported to my pre-disability days and it all struck me as so bizarre and sad–not simply the small moment I was in, but all that it represented.

Titus throws up about 5-10 times a week–more on a bad week–and this is part of his life. I don’t spend a lot of time thinking about it. The main thing I fret about is the calorie intake. But, we’ve managed that pretty well and he’s growing beautifully.

Self-pity and the isolation of thinking of our trials as unique is a dangerous dangerous thing and my strategy has been to stay as far away from it as possible and to try to plant thankfulness and sow gratitude. Granted, it’s not that hard, God has given me a life that has far exceeded any expectations that I had. I have a wonderful husband, five children and a church family that is very close to my heart. I am the richest of women, owing to nothing in myself.

But what do I do in those moments when a forgotten clip on a tube and a soiled slipper reveal that there are emotions and grief that haven’t been dealt with and are shoved down and threatening to overwhelm? I’ll tell you what I did do. I took a picture. So weird, but I just felt the need to document how bizarre it all was and I knew God was teaching me something that I wanted to remember.

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I think what I learned from it is something like, “Don’t cry over spilled milk. But every great once in a while, you can shed a tear for leaked stomach contents.”

Which brings me back to what Pastor John said, “Occasionally weep deeply over the life you hoped would be. Grieve the losses. Then wash your face. Trust God. And embrace the life you have.”

I don’t weep deeply over the life I hoped would be–I used to do that occasionally, especially when I was scared that Titus would die. But I don’t anymore, because my life is a story of undeserved grace. But every now and then I shed a tear for my boy, for his struggles, and for my slipper, and for all the throw up. Then I get a towel, wash up, and brace myself for the next time.

Mothering and the Reverse of the Curse

 

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Holy week is here, again, and has me in awe, again, over how our God takes a curse and turns it into promise. He takes punishment and turns it to ultimate blessing.

Many are probably familiar with the “proto-evangelium,” the first reference to Christ in the Scriptures that is found in Genesis 3. This is God’s curse of the serpent. And in God’s curse, is also found his unmistakable hint of promise.

“The LORD God said to the serpent, “Because you have done this, cursed are you above all livestock and above all beasts of the field; on your belly you shall go, and dust you shall eat all the days of your life. I will put enmity between you and the woman, and between your offspring and her offspring; he shall bruise your head, and you shall bruise his heel.” (Genesis 3:14-15 ESV)

Jesus will bruise the head of the serpent. The serpent will be put under Jesus feet. The best news of the universe and it was there in the beginning. And right under it is a parallel curse reversal that happens for women.

“To the woman he said, “I will surely multiply your pain in childbearing; in pain you shall bring forth children. Your desire shall be for your husband, and he shall rule over you.” (Genesis 3:16 ESV)

Many women are familiar with this part of the curse. Pain in childbearing. In pain you shall bring forth children. How many stories of pain and near-death experiences have we heard of childbirth. I have my stories to tell–5 live births, 1 miscarriage and 3 of the births with stories of true drama, heart-pounding stuff–emergency surgery, hemorrhages, blood transfusions–you all know the kinds of stories and have your own.

Yet in two ways, God takes the curse of childbearing and turns it into redemption.

First, God ordains that his Son, the God-Man, be born of a woman. The Savior of the world comes through a birth canal, and enters the curse. He uses the curse in order to turn it on its head.

The second is found in this well-known (because of how hard it is) passage from 1 Timothy:

“Yet she will be saved through childbearing—if they continue in faith and love and holiness, with self-control.” (1 Timothy 2:15 ESV)

How? How will she be saved through childbearing? I’m not a scholar, but I am mother. Could it be that part of how childbearing is redemptive for mothers is not that it is the atoning sacrifice that puts her in right standing with God, but that it is a means by which God keeps his daughters cemented to himself, humbled and reliant, as they care and pour out for children? This is a gift, a reversal of the curse, a privilege and nothing to scorn.

I read from the ESV study notes that the word “saved” is also frequently used to show perseverance and endurance in salvation. It need not mean that childbearing is the cause of salvation, which we know from all over the Scriptures is in Christ alone by faith alone through grace alone, but rather a means of an ongoing keeping, sanctifying, saving.

And childbearing has the connotation, not of mere birth, but of the ongoing care and raising of children–which applies to all women, mothers or not, by birth or adoption or some other connection. Childrearing is part of womanhood–aunts, friends, teachers, and on and on have incalculable roles in rearing the children around them. Which isn’t to say men don’t, but there is a distinction found here in the Scriptures and experienced in real life that we can all see in regard to a woman’s special role in the life of an infant and child and the reliance it produces in her on her God.

I’m in awe this Easter of our Savior who became curse and promise for us and who turned the curse directed at us into a means of painful, hopeful, miraculous redemption, even as I don’t fully understand it all–the glimpses are breathtaking.

 

Jumbled Up Thoughts on the Gift and Grief of Disability

I’ve been wanting to say something about disability and abortion, in light of the anniversary of Roe v. Wade, but haven’t been able to put it together.

I think my pastor summed up the scattered thoughts I’ve had when he said something to the effect of, “When someone discovers their unborn child is disabled, it’s the one time abortion isn’t just a choice, it’s considered by many, the right thing to do.” That’s not a direct quote–it’s probably not even close–but I think it represents the gist.

Disabled kids are just plain de-valued, both in the womb and out of it. Most pro-choicers view abortion as a necessary tragedy. One helpless life is being sacrificed at the hands of a bigger, stronger person. It’s a horror and I think most people’s consciences are at least pricked by it. But many people view the abortion of a disabled child as a kindness to the person they’re killing. They think it’s better for the disabled person to die than live–that their quality of life wouldn’t be worth the effort.

I don’t have anything new or insightful to say about it except, it’s a big fat lie. Disabled people are made in God’s image. It’s not OK to kill disabled people in the womb or any where else. I call them people. Children. Babies. Human Beings. They are NOT vegetables. Not less important than your dog. Or a whale. Or the environment.

The truth is even cognitively impaired, non-responsive people without voluntary movements or the ability to communicate represent to us people of mystery at the very least. No one can pretend to know the extent of their understanding or love or responsiveness. Why? Because they can’t tell us. (Except this man can: Ghost Boy.)

Disabled people are a gift.

Having a son with an abnormal brain has only convinced me further that every human is made in God’s image. We have more to learn from the disabled among us than could be imagined–especially the cognitively disabled.

So, if disabled people are gift (and they are), if their lives represent something incredibly important for us as the body of Christ, why this nagging grief? Why not just celebration? That’s been knocking around in my head for a while.

I think it’s because we want for our children the same joys that we’ve experienced. We want them to know things in the way we know them. We want to protect them from sin and there is deep grief in realizing that sin has had it’s impact from the moment of conception, in cases of congenital disability. It’s sad. It should be sad. It is not easy or simple to show people the simultaneous sadness and celebration–not because it’s too hard to understand, but because it’s hard to live.

Disability brings with it little and big griefs and little and big joys. Even the happiest times can be tinged with some heartache. Our Titus is doing so well the last 3 months. This has been a time of celebration. And I want to declare, “We will now return to our regularly scheduled programming!” I want to do everything to make life as “normal” as possible. At times, it seems like I’m really succeeding. Until I find myself learning how to remove a button from my son’s stomach and replace it by inserting a deflated balloon through the stomach wall and then inflate it to hold the button secure. Something about that just isn’t normal, no matter how much we get used to it.

wpid-g-tube.jpg

I sat in Titus’s neurologist’s office last week, eager to be told that my baby boy is somehow better, that his problems are mostly gone, that the MRI’s findings were a bad dream. Instead he carefully reminded me, “He’s doing wonderfully, but you’ve got to remember that he does have something really significant going on in his brain. He’s not out of the woods.” Why does that sting so badly, if disability is a gift? Because it’s a loss, that’s why.

How can something be a loss and a gain? How can disabled people be so essential to our understanding of God and love and each other and also be a reminder of the incredible loss that sin has wrought? This truth has been helping me see it:

“For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us. For the creation waits with eager longing for the revealing of the sons of God. For the creation was subjected to futility, not willingly, but because of him who subjected it, in hope that the creation itself will be set free from its bondage to corruption and obtain the freedom of the glory of the children of God. For we know that the whole creation has been groaning together in the pains of childbirth until now. And not only the creation, but we ourselves, who have the firstfruits of the Spirit, groan inwardly as we wait eagerly for adoption as sons, the redemption of our bodies. For in this hope we were saved. Now hope that is seen is not hope. For who hopes for what he sees? But if we hope for what we do not see, we wait for it with patience.” (Romans 8:18-25 ESV)

And what if that truth meets with this incredible statement from Joseph after the sin of his brothers sent him on a journey of awful trial after awful trial:

“As for you, you meant evil against me, but God meant it for good, to bring it about that many people should be kept alive, as they are today.” (Genesis 50:20 ESV)

Satan desires evil against us and our children in disability, but God is writing the story and He is planning it for glory. Subjected to futility in hope.

I have to remind myself that there is both gift and grief in disability. I keep falling off either side. Different people emphasize one over the other, and different seasons allow one to take center stage, but both are true, whether the gift feels huge and the grief tiny or vice versa. Making space in conversation and life for both will surely bless any family who’s walking through the happy heartbreak of disability.

Some dear friends have lost their baby to Trisomy 13 after nine months in the womb. Their story will tear you up and hold you together all at once. The only hope in life and death is our risen Savior.

Reaping a Harvest in the Snow

I was shocked last month when I saw our lilies with new buds and blossoms among the falling leaves of mid-October. The kids had told me about them a day or two before, but I hadn’t made it outside to check and had completely forgotten about it until I happened upon them for myself. It was startling and looked out of place, but beautiful.

Lilies in October
Lilies in October

At the same time, our indoor orchid was slowly dying after having bloomed for many months with the most blossoms at one time we’d ever had: 11. I pruned it back and now we wait to see when it will decide to flower again. It’s blossomed twice since we moved here over a year ago and three times at our old house.

The last of the blossoms.
The last of the blossoms.
Pruning.
Pruning.

I made it outside again the day before the snowstorm that hit yesterday. I was picking some things up and admiring the work of some friends that had come over to help us get our place ready for winter. I was surprised to see the lilies still going, even with the temperature having dropped.

Lilies in November
Lilies in November

I walked around to my garden which had been utterly neglected the last two plus months just to see what the damage was. I had purposely avoided looking at it, knowing that my priorities had to be taking care of the people under our roof and feeling guilty about the garden wouldn’t help anything. So my shock when I found three heads of cabbage just waiting to be plucked up was substantial, so was my delight!

November cabbage
November cabbage
Surprise Harvest
Surprise Harvest

I can’t help but relate this to life currently. When I step back from our life and see what it’s like, it’s not what I thought it would be like. It’s harder and sometimes scarier. Sometimes it seems like our life is an unexpected snowstorm in early November, when what we planned on was a nice spot inside with the fire going. We want to be the orchid that blossoms on the counter. Instead we find ourselves in an unattended garden with dropping temperatures.

Yet, isn’t that the miracle? Somehow or another, when we weren’t paying attention, just taking step after step in the life we were given, asking God to help us weather the cold, fruit happened. And by fruit I don’t mean accomplishments, I mean His fruit: love, joy, peace, patience, kindness, goodness, faithfulness, gentleness, and self-control.

By God’s mysterious grace, He ministers to us and through us in ways we never could have foreseen and wouldn’t have chosen. He causes growth in the winter and then uses it to nourish others. This is the ministry He gives us, walking through our own unique life circumstances with His Spirit. The love and peace he grows in us will be the fruit that another will need to sustain them as they walk through difficulties.

Snow Lily
Snow Lily

Your life may be nothing like you imagined it would be. I never dreamed we’d have an IV pole in our kitchen or that our son would get nourishment through a button put into his tummy. Maybe you never dreamed you still wouldn’t be married, or that you’d ever be divorced or that you’d be longing for a baby, or that you’d be moving again, or stuck in the same unhappy job, or that you’d be so.. ordinary. But whatever it is, it is the soil that He intends to make you fruitful in. It is the place that He is growing the seeds of His righteousness and Spirit. So keep on walking and trusting and don’t be surprised when you find yourself covered in snow and blossoming in winter. Because that’s our God.

wpid-novsnowlilies2.jpg

“..May people blossom in the cities
like the grass of the field!
May his name endure forever,
his fame continue as long as the sun!
May people be blessed in him,
all nations call him blessed!” Psalm 72:16,17

“The wilderness and the dry land shall be glad;
the desert shall rejoice and blossom like the crocus;
it shall blossom abundantly
and rejoice with joy and singing.” Isaiah 35:1

Bitterness, Forgetfulness, or Deeper Sympathy: Where Will Your Suffering Take You?

Our trials can produce all kinds of results in our lives. Some are beautiful and some are ugly.

I’ve been mulling over one of the beautiful things that Jesus’ suffering did in his life.

“Since then we have a great high priest who has passed through the heavens, Jesus, the Son of God, let us hold fast our confession. For we do not have a high priest who is unable to sympathize with our weaknesses, but one who in every respect has been tempted as we are, yet without sin. Let us then with confidence draw near to the throne of grace, that we may receive mercy and find grace to help in time of need.” (Hebrews 4:14-16 ESV)

I want to think about the part that says, “we do not have a high priest who is unable to sympathize..” In other words, we have a high priest who IS able to sympathize. His sympathy was secured by his trials and temptations. Do our trials and temptations secure our sympathy for others? Do our trials lead us to the throne of grace, pushing back our tendency toward disobedience and ushering mercy and help in our time of need?

During hard times, the temptations to sin are great. One way that sin tries to take hold is by telling us our suffering is too great to walk through without being angry or bitter. Sin tells us that our trial is so unique and difficult that no one else can really understand it or help us through it. This is the path to bitterness. Bitterness can never be validated enough, it is a vacuous hole of irritation at everyone else for not experiencing the suffering I’ve experienced. Bitterness is a martyr. Bitterness can only be satiated at the cross of Jesus Christ, with the acknowledgement that he has borne it all for us, and there is none to rival his pain.

Forgetfulness is another ugly road suffering can take us down. We come through some hard thing and at the end we’re done. We’ve filled our suffering quotient and did what we had to do to get through it. It’s behind us now. We’d rather not be around the people still stuck in some awful situation. Or, if we are around them, we conveniently offer the “to-dos” of how to get through it. Buck up. We’ve been there, and we’re over it. Everyone else should get over it too. Forgetfulness as a means of avoiding is unhelpful at best and untrue at worst. It’s a way we can almost rewrite what actually happened, we try to rewrite the pain and turn it all into triumph. It’s like the mother whose children are all grown and she mis-remembers everything as easier and better than it was. This woman is useless to the struggling young mom with littles. She can’t sympathize because she won’t remember the truth. Jesus didn’t do that. He remembered the trials.

Notice that no one in the universe had more legitimate reasons to take either of these paths than Jesus. Yet, his trials led him to sympathy. He is willing to sympathize with a people whose trials will always be minute compared to his. Are you willing to sympathize with people whose struggles seem really small to you? Are you willing to feel the hardship they’re feeling in such a way that it leads them to the throne of grace?

I’ve been pondering where our trial with Titus is taking us and I pray it is leading us to bigger love and sympathy for any and all trials, big and small. I felt early on when things were unfolding with Titus a need to harden myself to other people’s pain. My fear and pain over possibly losing him was so great that I couldn’t bear to really feel other people’s hardships. This is not God’s way. I am learning that grief cannot outdo love. No matter how deep it goes, it cannot consume the love of the Father in Jesus.

Recently we’ve had some tragedies strike nearby us. A father of children my children’s age passed away unexpectedly. A friend’s baby diagnosed with trisomy 13 at her 20 week ultrasound, expected to pass away before birth. A father abandoning his family. Cancer that seems to be everywhere. I’m asking God to keep our hearts tender. Let’s fight to go deeper in sympathy and TRUST God that He will be there with us. TRUST him that the grief cannot outdo the love, that death WILL be swallowed up in the final account. The resurrection is real, friends, and all my hopes are set on it.

If you want to read about our friends whose daughter, Mercy, is diagnosed with Trisomy 13, here’s their blog. Please pray for them.