I’m very thankful for the support and love we’ve received since the post on Sunday, mainly in the form of emails and facebook comments. If you’ve ever wondered whether you can minister to someone through technology via email, facebook comments, or texts, be assured, you can. And we have been the humbled recipients of that.
I, especially, have felt buoyed and strengthened, almost normal at times.
A friend asked me a week or two ago, if I was feeling ministered to by the Lord. And as I stopped to think about it, the answer was a definite yes. It seemed the Lord was going out of His way to make his care and presence obvious. A 9 month pregnant friend drove all the way across the Cities in the snow to bring us a meal the evening of the MRI, another friend who lives 5 states away had a package delivered the day we received the bad news of his MRI results with the beautiful lyric, “When all around my soul gives way, He then is all my hope and stay.” Even the music on the annoyingly chipper radio seemed subdued and reverent. And there were many other things that will stay anonymous, but were real kindnesses from God through His people.
Yet I’ve been the toddler whose dad is is giving them a hug after some big disappointment and they are kicking, screaming, crying and simply want what they want. They don’t want the comfort until they’ve come to accept the reality that they’re being denied something. I’m beginning to accept our reality, which means I’m slowly feeling His embrace as the loving thing that it is.
Right now I am incredibly grateful for the uncertainty that we are walking in. Initially after the MRI it seemed likely that Titus had this degenerative and fatal condition, but after a group of doctors met to discuss it last Friday, they still believe there is another option and that Titus could “just” have a static disability that would not get worse with time, but would reveal itself as he grows. What blessed uncertainty. If I’m given the choice between really bad news and waiting with a more hopeful option in play, I prefer the latter.
The uncertainty has allowed me to put the scary diagnosis possibilities on the back shelf of my brain and stay in the present, day by day realities. There will be more testing and eye surgery next month and therapy, but overall, the uncertainty has removed some of the paralysis, so I can just be thankful for Titus: thankful that he’s chubby, that he smiles, that he turns his head more now, that he coos. And mostly just thankful that he’s our son.
The Lord has hidden some things from us regarding Titus and he’s chosen to place us on this journey of heartache and unknowns. It’s a journey that is requiring me to learn how to receive. I know that it’s more blessed to give than receive, and I’ve always wanted the bigger blessing.
But God’s got a humbling work to do in me. He’s got steadfast love and compassion spilling out everywhere, they’re coming out of his fingertips through his people, and only a fool would turn away from that kind of receiving.
Please pray for Titus and all of us. We can’t see what’s in front of us, but we know who we’re following and He’s never led us astray.